Path: senator-bedfellow.mit.edu!bloom-beacon.mit.edu!newsswitch.lcs.mit.edu!newspump.monmouth.com!newspeer.monmouth.com!newsfeed.icl.net!newsfeed.fjserv.net!newsfeed.freenet.de!news.albasani.net!news.motzarella.org!aioe.org!not-for-mail From: "John Azzara" Newsgroups: alt.health.cfs Subject: FAQ: alt.health.cfs Date: Sat, 18 Nov 2006 12:34:37 -0500 Organization: Aioe.org NNTP Server Lines: 239 Message-ID: NNTP-Posting-Host: W0eHK9zUuqeJyPyvcL4MqA.user.aioe.server.aioe.org Mime-Version: 1.0 Content-Type: text/plain; format=flowed; delsp=yes; charset=iso-8859-15 Content-Transfer-Encoding: Quoted-Printable X-Complaints-To: abuse@aioe.org User-Agent: Opera M2/8.02 (Win32, build 7680) Xref: senator-bedfellow.mit.edu alt.health.cfs:3773 12/6/96 Frequently Asked Questions About -------------------------------- ALT.HEALTH.CFS Chronic Fatigue Syndrome Table of Contents -------------------------------- I. Reason for the Creation and Purpose of ALT.HEALTH.CFS II. Direction we hope ALT.HEALTH.CFS Takes III. Related or Interesting Web Sites IV. Access alt.health.cfs We have endeavored to keep this short and to the point so PWCs can read and understand the information without taxing themselves and/or others. Thanks for coming to alt.health.cfs!! We hope to see you here frequently!!! Remember: This group is UNMODERATED *********************************************************** I. The reason for creation and purpose of alt.health.cfs: Many in the CFS/CFIDS community have expressed a need for a TRULY and completely unmoderated newsgroup. There are newsgroups and list servers = = that claim to be un- or loosely moderated however, there is still an owner an= d there is still some level of moderation. (this varies by degree) = alt.health.cfs is GENUINELY unmoderated, at ALL Times. Having a completely unmoderated newsgroup means that no one, even the creator of the group,(John Azzara) can dictate policy or take any action= against any one's postings and opinions. This forum is a true forum of f= ree speech and open exchange of ideas and theories relating to CFIDS and CFI= DS issues. You no longer have to be in fear of criticism for things such as= etiquette, grammar, spelling errors, or just voicing your opinion. No = matter how outrageous or politically incorrect your personal feelings may be. = Debating is fine. However, we would encourage everyone to try to act in a civil and adult manner and try to treat others as you would like to be treated= . A very simple concept and one we believe can work. There is a small price one has to pay for this freedom of speech. That i= s = we are left open to what one would consider obscene postings, advertising's= = and wrongful public ridicule (flaming). But in our opinion this is a very sm= all price to pay for freedom. It is very simple to deal with these posts, no= = matter how inflammatory. We encourage that when you see these types of posts to merely skip by them, delete them and/or don't even bother viewing the= m. ************************************************************************= ******** II. The direction we hope this newsgroup takes: That this forum takes on a direction to be more informative about CFS/CF= IDS and related diseases and conditions. There are already several newsgroup= s = and list servers that are more geared to sharing one's day to day joys and o= r suffering with this disease. This group is intended to be more medically= / informational oriented. Posts about research and medical news would be strongly encouraged. We encourage everyone to post as often and as long = as = they would like. Again no one can stop you for the length or controversial = content of your post. It is up to each reader to decide what they wish to read o= r skip. Being a completely unmoderated group you may encounter times when you wi= ll find your posting to alt.health.cfs show up in other groups and list servers without your written permission. Please bear this in mind. You m= ay want to add a disclaimer at the top and bottom of your posts asking that= = the poster get your permission before reposting. While reposting without cre= dit or permission is technically illegal, so much of it goes on, and posters= = often deletes your name or the name of the writer. It's impossible to put a stop to this. Bear this in mind when posting. We would also like to = encourage everyone to do a little educational work on finding out how newsgroups w= ork and propagate. Some people on alt.health.cfs are highly informed. You ma= y = want to review older posts to get information. Feel free to ask older newsgro= up members for web sites, or books about CFIDS to learn all you can about the subject. Since this group was created 12/6/96 it will take some time for your loc= al provider to subscribe to it. The best way you can have access to our newsgroup is to ask your provider to add it to his groups list. A most effective way of reading the newsgroup is to utilize newsgroup search engines. Such as www.dejanews.com or www.reference.com, both these are v= ery effective in reading and posting messages. As time goes on the group wil= l propagate better and be easier to access. Speak to your provider to = encourage them to add this newsgroup to your list. The creator of alt.health.cfs is John Azzara and he can be reached at jazzara@suffolk.lib.ny.us John has had CFIDS for approximately 4 years and has been active on the net for 3 years. If you have any suggestions to make alt.health.cfs bet= ter please write!! Remember, Mr. Azzara in NO WAY can make moderation changes or enforce any rules. This is your newsgroup! Currently, alt.health.cfs is available only as a newsgroup. There is no= current listserv access. We look forward to speaking with you on line as= we all travel our path to wellness!! Caregivers, doctors, researchers a= nd concerned friends of PWCs are more than welcome on alt.health.cfs ************************************************************************= ******** Subject: Beware of false prophets! Please beware of anyone trying to preach the magic cure for cfs. At this time there is no one treatment, or what you would consider a cur= e for this disease. What treatment may have been beneficial to one, will n= ot necessarily be beneficial to all. Unfortunately there is no definitive c= ure at this time. In addition to this, many treatments that are being sugges= ted at this time may actually worsen or aggravate your symptoms, and cause more harm than good. Especially treatments that may worsen other disease= s such as hypertension. One of the downside of being a completely unmoderated newsgroup is being= subject to all kinds of suggested irresponsible medical advise and treatments and, possible advertisements for a cure. This is a very small= price one has to pay for freedom of speech. Please consult your medical= physician before embarking on anyone's supposed cure. ( snake oil). Thank you very much for reading this and be well. This newsgroup is available only via Usenet or a search engine such as http://www.dejanews.com. It is not available via email by subscription a= t this time. IV. RELATED OR INTERESTING WEBSITES The Neurological Aspects of CFIDS http://prairie.lakes.com/~roseleaf/fibro/cfs-1.html Wilson's Syndrome http://www.mall-net.com/mcs/wilsons.html CFIDS - Sleep Disorder http://www.healthy.net/library/articles/chaitow/fibromy/fibro3.htm CFSUM-1 (CFIDS Urine Marker) http://www.newcastle.edu.au/department/bi/birjt/cpruis MCS/Multiple Chemical Sensitivity http://www.mall-net.com/mcs/ MEDLINE Searches http://www.healthgate.com New Jersey CFIDS Association http://village.ios.com/~njcfsa/join.html http://www.wdn.com/mirkin/7120.html FMS and CFS sensitivity site http://www.wdn.com/mirkin/7120.html Managment of CFS in CFIDS http://www2.rpa.net/~lrandall/index.html John Azzara, Creator of alt.health.cfs Web Page http://www.geocities.com/HotSprings/Spa/5047/ Enjoy alt.health.cfs and tell your friends!! We look forward to seeing you on line!! ------------------------------------------------------------------------= -------- IV. There are other ways to access alt.health.cfs some are listed below= . A. http://groups.google.com B. = .